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Recap of YWHAG Community Facebook Meeting



We are delighted to share that our fourth YWHAG Community Facebook meeting was a heartfelt and inspiring gathering! It was truly wonderful to meet the new families who have recently joined our community. The personal stories shared at the beginning were a great opportunity learn more and better connect with each other. To respect everyone's privacy, this part of the meeting was not recorded.


We were excited to share updates about the ongoing research being conducted on the YWHAG genetic mutation. This research is crucial in advancing our understanding and developing potential treatments. However, continued progress depends heavily on our collective efforts. We want to stress how important it is for our community to engage in fundraising activities to keep the research moving forward.


We welcome any ideas for virtual events or other fundraising initiatives. Your creativity and participation can make a significant difference, and we are happy to help coordinate and support these efforts in any way we can.


We're excited to announce that we'll be hosting another meeting in the spring! We look forward to bringing everyone together again to continue these meaningful conversations. .


For those that were unable to attend a recording of the meeting can be found here:


Passcode: K4Q6Jo%V


Thank you to everyone who joined us. Together, we're building a strong, compassionate community and making strides toward a brighter future.

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