PRESS &
MEDIA
SHARING OUR STORY. ADVANCING AWARENESS. CREATING HOPE.
The YWHAG Research Foundation is committed to raising awareness of YWHAG-related DEE and giving a voice to the families affected by this ultra-rare disorder.
Through interviews, podcasts, news features, research conversations, and other media opportunities, we share the stories of our families, highlight progress in YWHAG research, and help bring greater attention to the urgent need for treatments.
Every conversation is an opportunity to educate a new audience, connect with potential collaborators, and move our community one step closer to better treatments and, ultimately, a cure.
FEATURED MEDIA
Explore interviews, podcasts, news stories, and other appearances featuring the YWHAG Research Foundation, our families, researchers, and partners.
PRESS RELEASES/NEWS ARTICLES
UAB HUGH KAUL PRECISION MEDICINE INSTITTUE HELPS FAMILY TURN DIAGNOSIS INTO GLOBAL ADVOCACY
For one family, a difficult genetic diagnosis sparked a mission. With help from the University of Alabama at Birmingham (UAB) Hugh Kaul Precision Medicine Institute (PMI), they’re now turning their journey into hope for families worldwide.
TOGETHER, WE CAN MAKE YWHAG HEARD
For an ultra-rare disease, visibility can change everything. The more people who hear about the ultra-rare YWHAG Genetic Mutation, the greater the opportunity to attract new families, researchers, collaborators, supporters, and partners to our efforts.
By continuing to tell our story and share our progress, we are working to transform awareness into research and research into hope for every family affected by YWHAG.