The YWHAG Research Foundation is committed to raising awareness of YWHAG-related DEE and giving a voice to the families affected by this ultra-rare disorder.

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Through interviews, podcasts, news features, research conversations, and other media opportunities, we share the stories of our families, highlight progress in YWHAG research, and help bring greater attention to the urgent need for treatments.

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Every conversation is an opportunity to educate a new audience, connect with potential collaborators, and move our community one step closer to better treatments and, ultimately, a cure.