top of page

R

E

S

O

U

R

C

E

S

You Are Not Alone 

One of the goals of YWHAG foundation is to support families as you navigate a new unknown. No one can better understand the pain, confusion, and weight of the diagnosis than those that have and are living it. The foundation is here to support you and we welcome you to our community. We want to help you in any way we can.

Young Volunteers

Join our Facebook YWHAG community to be connected with other families

  • Facebook

KNOWN YWHAG CASES

TOTAL COUNT - 37

14

North America

2

South America

20

Europe 

1

Africa

0

Asia

1

Australia

RESOURCE LIST

Every day, we face questions and search for answers that will help us on our YWHAG journey. Whether you’re new or a seasoned veteran, our resource area is a great place to find helpful information. Here, you’ll find tools, links to local resources research articles, and new research/developments. All of our content is gathered, written and developed by other YWHAG parents and family members.

Please remember that not all information will be specific to you or your family. These resources shouldn’t replace any medical advice or direction you may receive from your professional caregiving team. This is simply a place where we can share our resources and develop a listing of everything from therapies to educational reading and self care.

YWHAG Research

All new and published studies in the National Library of Medicine.

Study Published December 2021 on the YWHAG Genetic Mutation

Reference For In Depth Analysis of the Gene

YWHAG Tissue Specific Interactions

Reference For In Depth Analysis of the Gene

Rare Disease Related

Drug repurposing: progress, challenges and recommendations

NEWS & UPDATES

bottom of page