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RARE TOGETHER
YWHAG Research Foundation has joined the Rare Patient Network, powered by the Ciitizen platform, a digital Natural History Study that organizes, summarizes and stores patient medical record information obtained from multiple hospitals and providers.
Test results and vital information which may expedite research and treatment protocols are often trapped in medical records that are stored across several, disparate locations IRL or digitally. This can be time consuming to retrieve in moments of emergency, especially with patients that have acquired voluminous amounts of data and test results surrounding their condition.
With Ciitizen-- as a patient or parent/guardian, one can unlock these records and enable research in a private and secure way-- instantaneously. Ciitizen is designed to be leveraged as a transparent and central catch-all, and to facilitate cross-provider access in critical, time-effective manners.
Ciitizen is an easy-to-use digital platform to store and retrieve medical records in a single location and is accessible anywhere, at any time.
DIGITAL RECORDS
Data from medical records is organized and summarized in a secure digital account at no cost to you.
ALL RECORDS
Collects participants’ medical records from all institutions visited, and they retain full control over medical records.
FULL CONTROL
Having all medical records in one place helps you gain control and better understand your medical history​. Easier access to your medical records which can be shared with new providers, or, to solicit second opinions with the click of a button.
MAKE AN IMPACT
You can have a big impact on research with minimal effort! With your consent, clinicians, researchers and biopharma can access anonymized data to aid research.