With this disease, time is our adversary.
Join our efforts to build a community and the databases of information necessary to understand the YWHAG Genetic Mutation. This will help researchers develop disease-modifying interventions and work towards a cure. The YWHAG Research Foundation is committed to helping researchers and the YWHAG community.
HOW YOU CAN HELP
As a small Foundation made up of parents and family members of those affected with YWHAG Genetic Mutation, we wear lots of hats. As we find more families and more researchers,
more work needs to be done. We welcome your support. There are many ways you can support the Foundation and support the community.
VOLUNTEER
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Awareness: Follow and participate in our social media and our affiliated groups.
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Patient Advocate/Ambassador: Sign up to become the understanding voice for a parent whose child was recently diagnosed.
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Photographs: Contribute photos for awareness and fundraising campaigns.
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Translator: Help the foundation speak with newly diagnosed families and help them enroll in the registry.
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Other Roles: Help with social media, event planning, grant writing, graphic design, web design, fundraising, copywriter, research coordination.
PARTICIPATE IN RESEARCH
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Enroll your loved one in the International YWHAG Patient Registry (coming soon)
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Participate in the Invitae YWHAG Patient Registry (U.S. families only)
FUNDRAISING
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Make a financial donation or donate other assets.
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Start your own fundraising event for the foundation
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Assist the foundation with the fundraising campaigns.