Thank you for everyone that participated in our Zoom meeting. It was great that our community was able to come together from all over the world in hopes of finding a cure for our kids.
For those that were unable to attend or would like to rewatch the presentation as a lot of information was covered, a link to the recording can be found here: Zoom Recording
Our goal is for fundraising to occur within the next two months with a deadline of August 2023. The goal of funding the study is start with the needed initial deposit of $160,000 and get the research going as quickly as possible and work on securing the remaining $90,000 as the research is ongoing.
To add in the fundraising efforts, we have made a template that you are free to modify to send off to potential donors or interested parties. Also, at the request of the community, our scientist is working on providing a one page overview that can used and presented people to help them quickly understand the science behind this disease (We ask you refer people to our website and the UAB study while this is being written).
Donation Template Letter:
Scientific Letter for Donors:
Slide Presentation from Dr. Spitznagel:
If there are any questions or concerns or potential donors would like to speak with the foundation or our scientific advisor, let us know and we would be happy to set up a meeting.