Community Update: Advancing Research Together For YWHAG, every step forward is made possible by families who choose to participate in research efforts and by supporters who help fund the work that drives discovery. From contributing to studies, to sharing experiences, to supporting fundraisers, each family plays a role in accelerating progress. Because YWHAG is ultra-rare, every data point matters. Every participant helps researchers better understand the condition, and every dollar raised...

For anyone who couldn’t join our November 11th meeting, here’s a quick recap of the progress and updates we shared. The foundation continues to push research forward, and we’re grateful for everyone’s involvement. Drug Repurposing Project Progress We continue to make important progress with the drug repurposing project. A research paper will be published in the coming weeks, sharing early findings and new insights about the mutation as we push for a better understanding of the mutation and...

`Couldn’t make the May 19 Zoom? Here’s the highlights: Science spotlight. Dr Helen Chen explained how YWHAG variants impact gamma...